Friday, March 30, 2007

March 30, 2007 - We are home

Keira has had the first 2 infusions of the first round. She did so well, they let us come home from the hospital tonight rather than staying another evening. She has one more tomorrow.

On Thursday of this week, beginning about 8:00 pm, they gave her two different medicines over a 3 hour period. Thankfully, she slept through most of it. Today, she had 2 more hours. She slept through that as well. It has been a real blessing. When she has been awake, for the most part, she has been in good spirits so far. She does not appear to be in pain and has had very little nausea. Tomorrow she has one more 2 hour injection, then about 3 weeks off.

We are very grateful that we have finally begun the chemo. It is a very strange feeling, sitting in a hospital room, late at night, everything is dark and foriegn, and your little girl is asleep in a iron crib that is not hers and you watch as toxins are being pumped into her little body. It was kind of surreal and scary and a relief at that same time. You feel like a bad parent looking at the tubes going into her, seeing her hooked up to machines and knowing the poison that is being pumped into her tiny veins, yet watching the sublte movement of her breathing, the barely noticable movement of her chest, you know deep down that whatever pain you may be causing her is solely to make sure that little heart continues to beat and that tiny chest maintains it delicate rythmic pattern for years and years to come.

We are almost through the first round and Keira remains strong and happy. Please pray for her strength. The road still stretches on for many miles. There are also a number of possible side effects to the chemo that we are asking God to eliminate for Keira. Please pray for that as well. Mostly, pray for the tumor to respond to the chemo in a favorable way so that this beautiful little child can live the full course of her life.

Thank you all so very much

Jason, Erin & Keira

3 comments:

Anonymous said...

Just wanted to let you know that you have hundreds of people at Trinity praying for you!!! The Junior Highers pray for Keira every weekend and are always in awe of your little girl and her strength and courage that God has given her! I pray that God continues to draw you closer to Him!

With Love,
Jamie and the Junior Highers at Trinity Bible Church :)

Anonymous said...

Jason, Erin, and Sweet Keira,

May it bring your hearts a little joy to know you have so many strangers pulling for you. We got a bookmark at church last Sunday with your little Angel's picture on it, and though we do not know you, our hearts have been completely taken by each of you. We am storming the throne for all of you--asking that God will deliver sweet Keira through this, and that you and Erin will be blessed with the peace that surpasses our finite understanding of an infinite God. We will continue to pray that the two of you may be joyful in hope, patient in affliction, and faithful in prayer.

We have so many people praying for you. Thank you for keeping this website up to date so we can know how little Keira is doing. Your faith is inspiring to all of us.

In Christ,
Patrick, Valerie, and Tucker Chamberlain

Anonymous said...

We're still praying for you guys! We think about Keira and you both every day and pray that you will feel the Lord's arms around you.

I'm so glad you were able to go home. We're praying for complete healing.

Love, Rebecca Jones

About Me

At the age of 10 months, Keira was diagnosed with stage IV neuroblastoma. She has completed 4 rounds of chemotherapy and 2 surgeries. She has had a wonderful response to therapy and now has only a small mass left in her chest.

3/9/2008 - Celebrating one year from diagnosis

Stylin at the Easter Egg Hunt!

2 years and I still love cake!

First trip to the zoo - a great reward after a long day at Childrens!

- and I even got to hold a bird!

I see how long it's taking mommy to get through - I'd better get started now!

PIGTAILS!

First day of school with best friend Ellie

How am I going to stick this landing?

The Fam

Keira's first cake

Laughter

Before

Before

Daddy & Me

Daddy & Me
Before