Wednesday, March 21, 2007

March 21, 2007 - a very long day . . .

Keira got another MRI today to check the spinal canal. It was negative. That is good news. We also had a long talk with the Dr today.

This Friday, Keira will have a port put into her chest. It is kind of like an IV that stays under the skin until the chemo is over. Instead of sticking her each time (which her veins could not handle anyway because of her age), there will be a port just under the skin with a tube attached leading to a mjor vein. Each round of chemo will be administered through this port. The Dr said that it is a little uncomfortable at first, but that kids do really well with it.

This Friday they will also do a biopsy to determine the type of tissue of the cancer. This is a very important test. A favorable tissue means a better prognosis. Please pray for this.

Her chemo will begin either this weekend or by wednesday of next week. On this first round we will be spending 3-4 days living in the hospital. Then, every three weeks after that, she will have another round. Each time she gets a round of chemo, we will spend 2-5 days living in the hospital. Then we get to take her home for at least 2 weeks, which is nice.

We got to go up to the floor where the cancer patients stay. For a hospital, it is pretty nice. There is a very cool playroom with lots of toys for Keira. The people we talked with were also very nice. And while we are not looking forward to this, if we have to live in a hospital for a few days at a time, this is a pretty good place.

So, we have a very important procedure this Friday along with a port placement and maybe even the beginning of chemo.

It has been a very long day. We were supposed to go in at 11:00 am and be gone by about 2:00 pm. We got there at 11:00 am and sat in the waiting room with our very hungry 11-month old for 1 hour and 50 minutes (she is not allowed to eat for 6 hours before the scans). That was less than fun . . . then the hour long scan she went through took 1.5 hours at which time a nurse came and told us it would take another hour. So, we went upstairs to meet with the doctor. When we got upstairs, they called us and told us Keira would be done in 15 minutes. So we headed back down. Before we even got off the elavator, they called again to tell us she was awake. We were very confused by the whole thing.

So after 4 hours, she was finally done and we went and talked with the Dr for about an hour. By this time, we were all very ready to go home and eat something. So we walked the mile or so to our car, and I reached into my pocket to grab the keys but found only pocket lint. We frantically searched for our keys, but they were nowhere to be found. So we treked back to the hospital, retraced out steps and checked with house keeping, security, nurses, and random people walking down the halls, but our keys were lost. To really make this exciting, you know those little credit cards that banks give to place on a key ring? Erin's bank card was on her key ring. We called the bank to tell them we lost it and put a stop on it, but wouldn't you now it, the card had already been used. Yes, someone robbed the parents of a cancer patient in a children's hospital (and some poeple wonder if sin is real). The thief had gone to Kroger and spent $10.87! The bank put a stop on the card, a friend brought us a spare key and we rolled into our garage about 8:30 pm. What a day!

Thank you all for standing with us. We love you. We appreciate you. We need you.

Jason, Erin & Keira

8 comments:

David Roseberry said...

I am so sorry for your pain and heartbreak... But I want you to know that Fran and I are with you in Spirit...and we will be praying for you...and baby Keira. Truly we will.

We don't know of your personal pain...we can't even imagine...but we share the faith in the Lord of all life.

Please take comfort in the many friends you have that are praying for you...as we continue to do.

Pax Christi,

David Roseberry

Unknown said...

Jason, Erin & Keira,

No words can even begin to tell you how sorry I am for what you are going through and I pray that this nightmare will be over soon.

Please let me know if there is anything I can do for you now or in the future. My heart goes out to you and I am praying like I've never prayed before to have God provide peace, healing and wisdom during this time.

Much Love,

Anna Marano

Unknown said...

For Keira and you both we pray to...

YHWH-Yireh (Yahweh-Yireh) — "The Lord will provide" (Genesis 22:13, 14).
YHWH-Rapha" — "The Lord that healeth" (Exodus 15:26).
YHWH-Niss"i (Yahweh-Nissi) — "The Lord our Banner" (Exodus 17:8-15).
YHWH-Shalom — "The Lord our Peace" (Judges 6:24).
YHWH-Ra-ah — "The Lord my Shepherd" (Psalms 23:1).
YHWH-Tsidkenu — "The Lord our Righteousness" (Jeremiah 23:6).
YHWH-Shammah — "The Lord is present" (Ezekiel 48:35).
Tzur Israel — "Rock of Israel".
(from wiki)

Anonymous said...

Jason and Erin,

What a precious child you have! I know that you know she is precious, but also know that she is precious to our Father. I was sent this Blog by a friend of mine. I want you to know that I am praying for ya'll and Keira. I also just want to encourage you!

Know that God loves you and has a great plan for your daughter. He knitted her together in your womb, and she was fearfully and wonderfully made. Know also that your are in Gods thoughts and if you count his thought about ya'll they would out number the sand. (PS 139:13-18)

Know that God will never leave you, nor forsake you. (Hebrews 13:5b) God wants you to cast your cares upon him for he cares for you and will substain you (Ps 55:22).

Philippians 4:6-7 tells us to be anxious for nothing, but in everything by pray and supplication with thanksgiving let our request be know to God, and the PEACE of God which surpasses all comprehension will guard your heart and mind in Christ Jesus.

Know also that in 2 Chronicles 16:9 says that "The eyes of the Lord move to and fro throughtout the earth that He may strengthen those whose heart is completely His."

God will be your strength, your help, your healer, your FAITHFUL friend, your Father, your comforter, your PEACE, your strong tower, your loving God, your all in all and much more!

From your last entry it obvious the spirital battle that is going on. Satan is really working over-time on ya'll. I am praying for you and praying that you persevere through these trials. James 1:2-4 say "Consider it all joy, my brethern, when you encounter various trials, knowing that the testing of your faith produces endurance and let endurance have its prefect result so that you may be perfect and complete, lacking in nothing."

Know that God is Faithful! He loves ya'll and cares deeply for you. Isaiah 49:16 says "Behold, I have inscribed you on the palms of MY hands." Your name is on his hands, he thinks about you daily, he knows you and cares for you.

I am praying that your daughter will be a great testimony of God's healing power, love and faithfulness. He has a plan for her life and I pray that His glory will shine through Her and you during this time. I am also praying that the peace of God will engulf you and you will feel his loving arms around you daily.

Isaiah 26:3 says "You will keep him in perfect peace, Whose mind is stayed on You, Because he trust in you." I pray that you will have that peace and comfort that comes from God.

In Christ,
Amanda

Miss Mommy said...

Bowmans-

I just wanted to let you know that my friends and I prayed for you together yesterday. You are on our hearts.

In Christ,

Emily Malone

Anonymous said...

I hope and pray that your little baby recuperates. I am reminded of the struggle of Job, a just and good man among wicked people, but God allowed him to be tested, because Jehovah knew he was just and we do not serve God just because he gives us good things. You must have indeed God`s favor, to allow you to endure this. He knows exactly what we can handle and what we cannot. He never just closes a door. Attach yourself to Him even more fiercely now. There is no one better to be with. I hope he grants you peace, wisdom and health for your little girl.
Lots of love,
Elaine Biss

Anonymous said...

I cannot fathom the anguish that you are all feeling right now. I hope that you continue to have the kind of courage that I know you both have, and that when it falters in dark moments that you are not too hard on yourselves. My thoughts are with all of you and I hope for a speedy recovery. Love to you, Meg Sullivan

Anonymous said...

I wanted your family to know that we have a group of men, from New Mexico to Tennessee, committed to praying for you through an email prayer chain. The chain grows weekly so there are probably people praying that I am not even aware of at this time.

We are praying that God provides you the strength, energy and patience one day at a time. That you will rest in His arms despite the challenges, frustrations and fears that lay before.

God bless each of you.

About Me

At the age of 10 months, Keira was diagnosed with stage IV neuroblastoma. She has completed 4 rounds of chemotherapy and 2 surgeries. She has had a wonderful response to therapy and now has only a small mass left in her chest.

3/9/2008 - Celebrating one year from diagnosis

Stylin at the Easter Egg Hunt!

2 years and I still love cake!

First trip to the zoo - a great reward after a long day at Childrens!

- and I even got to hold a bird!

I see how long it's taking mommy to get through - I'd better get started now!

PIGTAILS!

First day of school with best friend Ellie

How am I going to stick this landing?

The Fam

Keira's first cake

Laughter

Before

Before

Daddy & Me

Daddy & Me
Before