Wednesday, June 11, 2008

June 11, 2008 - Results

Good news! Despite the fact that Keira's bloodwork came back on Friday with some possible abnormalities, the rest of her tests came back earlier today and show only good news! Keira remains NED (No evidence of disease) and her doctors are spacing her follow up out to 6 months. We are all so happy with these results. Thank you for all your prayers on her behalf!

Friday's testing was rough on Keira. When we drove up to Children's, Keira started protesting - "No go here today. Let's go to Ellie's house." She knew. They had a problem getting the IV started which meant more than a few tries (ouch!) Additionally, Keira's body has grown tolerant to the medicine that they use to sedate her for the CT scans so the first dose they gave her didn't work. She remained very upset for quite a while. They gave her an additional dose to settle her down, which worked beautifully. Unfortunately, the extra dose made her sick! After a day full of bad experiences, we still remain thankful - it could be so much worse. We are grateful for where we are at, and try our best to make these times as short as possible and then celebrate their accomplishment with something fun. This weekend to celebrate we went to the zoo.

Keira had a wonderful time and has aked to go back several times. She wanted to ride the zebras, and the lions. How do you explain to a 2 year old that you can't ride a lion? We distracted her from this request by letting her ride some shetland ponies. She was aprehensive at first, but ended up having a great time. We will try to get some pictures posted soon of her ride on the "real horses".

Thank you!
Jason, Erin and Keira Grace

Wednesday, June 4, 2008

June 4, 2008 - More testing

A quick update for all of you who are following us on this journey. Keira returns to Children's for more testing this Friday (June 6th). We will begin the day in radiology and have her scans done then report for labwork and a physical. It has been three months since her last tests and we are anxiously awaiting some good news.

It is amazing. Though Keira looks and acts like a completely normal two year old (tantrums and all) the cancer experience changes the way you view things. The past couple of weeks she has been more irritable on a regular basis than normal. Those of you with kids are probably thinking "welcome to the terrible two's". While we know that this is a normal part of two year old development, it is difficult not to worry a little. We have every reason to believe that Friday's tests will bring us continued good news... but will feel much better once we have them firmly behind us!

Throughout Keira's journey we have asked you to join us in helping raise funding and awareness for pediatric cancer. We have another request for you. One amazing mom is doing everything she can to get at least ONE major company to agree to put a gold ribbon (the gold is for our most precious gift - our children) on their product to raise awareness about childhood cancer. Please click here to sign.

We promise to post updates once we have some results - likely the first part of next week. Thank you for all your prayers! God has brought us through such an amazing journey and given us so many gifts through this. We are so grateful to you all for walking with us through this.

Jason, Erin, and Keira Grace

About Me

At the age of 10 months, Keira was diagnosed with stage IV neuroblastoma. She has completed 4 rounds of chemotherapy and 2 surgeries. She has had a wonderful response to therapy and now has only a small mass left in her chest.

3/9/2008 - Celebrating one year from diagnosis

Stylin at the Easter Egg Hunt!

2 years and I still love cake!

First trip to the zoo - a great reward after a long day at Childrens!

- and I even got to hold a bird!

I see how long it's taking mommy to get through - I'd better get started now!


First day of school with best friend Ellie

How am I going to stick this landing?

The Fam

Keira's first cake




Daddy & Me

Daddy & Me