Keira has had the first 2 infusions of the first round. She did so well, they let us come home from the hospital tonight rather than staying another evening. She has one more tomorrow.
On Thursday of this week, beginning about 8:00 pm, they gave her two different medicines over a 3 hour period. Thankfully, she slept through most of it. Today, she had 2 more hours. She slept through that as well. It has been a real blessing. When she has been awake, for the most part, she has been in good spirits so far. She does not appear to be in pain and has had very little nausea. Tomorrow she has one more 2 hour injection, then about 3 weeks off.
We are very grateful that we have finally begun the chemo. It is a very strange feeling, sitting in a hospital room, late at night, everything is dark and foriegn, and your little girl is asleep in a iron crib that is not hers and you watch as toxins are being pumped into her little body. It was kind of surreal and scary and a relief at that same time. You feel like a bad parent looking at the tubes going into her, seeing her hooked up to machines and knowing the poison that is being pumped into her tiny veins, yet watching the sublte movement of her breathing, the barely noticable movement of her chest, you know deep down that whatever pain you may be causing her is solely to make sure that little heart continues to beat and that tiny chest maintains it delicate rythmic pattern for years and years to come.
We are almost through the first round and Keira remains strong and happy. Please pray for her strength. The road still stretches on for many miles. There are also a number of possible side effects to the chemo that we are asking God to eliminate for Keira. Please pray for that as well. Mostly, pray for the tumor to respond to the chemo in a favorable way so that this beautiful little child can live the full course of her life.
Thank you all so very much
Jason, Erin & Keira
Friday, March 30, 2007
Thursday, March 29, 2007
March 29, 2007 - the battle begins
Today at 1:00 pm, Keira Grace goes goes in for her first round of chemo. We feel like this is a turning point. The tests are over; the war begins. We have seen in our little girl a strength that defies her age, that defies her little body, that is going, with God's help, to defy this cancer. She has been poked and prodded, put to sleep, had a foreign object put into her chest, has gone without eating mutiple times for way too many hours, been in a hospital waiting room as much as her own home, but she still has a smile on her face, she still yells at the top of her lungs, "Duck!" -- she is not giving in and neither are we.
Less than an hour ago, my students and so many other high school students at Trinity Christian Academy presented Keira with a gift - 130 stuffed ducks! It was beautiful. For the last week, students have been bringing in ducks and hiding them in the dean's office. The dean has kept her door shut for the last week, cracking it open to allow the students to drop off the ducks and quickly closing it again to make sure I did not see. Now, her office is not that large, and some of those ducks are . . . that office got a little crowded (I would not be surprised if she began having nightmares about large, yellow stuffed ducks).
Please continue to lift our daughter up in your prayers, especially today as she begins chemo. Pray that the tumor will respond and be completely eradicated. Pray that Keira's strength will remain and she will continue to love life as she does now. We love you. We thank you. We still desperately need you. Jason, Erin & Keira
Less than an hour ago, my students and so many other high school students at Trinity Christian Academy presented Keira with a gift - 130 stuffed ducks! It was beautiful. For the last week, students have been bringing in ducks and hiding them in the dean's office. The dean has kept her door shut for the last week, cracking it open to allow the students to drop off the ducks and quickly closing it again to make sure I did not see. Now, her office is not that large, and some of those ducks are . . . that office got a little crowded (I would not be surprised if she began having nightmares about large, yellow stuffed ducks).
Please continue to lift our daughter up in your prayers, especially today as she begins chemo. Pray that the tumor will respond and be completely eradicated. Pray that Keira's strength will remain and she will continue to love life as she does now. We love you. We thank you. We still desperately need you. Jason, Erin & Keira
Monday, March 26, 2007
March 26, 2007
I can breath today in a way that I have not been able to in three weeks. Everything seems different. It keeps hitting me in waves. About every 15 minutes it is like a gentle breeze washes over me, goes deep down into my lungs and I feel a sense of peace.
We are still at the beginning, and there are no guarantees that our baby will make it through this, but today we saw the faithfulness and wonder of God. The doctor called this afternoon to let us know the results of the biopsy. It is good. It is wonderful! She is now being categorized as stage 4, but at intermediate risk, not high risk. This means not only that her prognosis is better, but her chemo will be less toxic.
We are so happy for her, so grateful to God and so amazed at this whole situation in our lives. Something so dark has brought so many people together in prayer and has touched so many lives and taught us so many lessons in such a short time. A little 11 month-old girl, who right now is bobbing up and down (her dancing) to an electronic version of Yankee Doodle and smiling her 6 tooth grin has taught her mom and dad to value life in a way we never understood before and has touched the hearts of 1000's people, many of whom we do not even know. All I can do is smile. I am a dad, and I could not be happier. That is my little girl.
We cannot thank you all enough for spreading the word and for praying constantly for us and Keira Grace.
The journey we are about to embark on is still a long one on a difficult road, but today the sun is a little brighter, the path a little flatter, and our hope a little stronger.
Great is His faithfulness
Jason, Erin & Keira Grace
We are still at the beginning, and there are no guarantees that our baby will make it through this, but today we saw the faithfulness and wonder of God. The doctor called this afternoon to let us know the results of the biopsy. It is good. It is wonderful! She is now being categorized as stage 4, but at intermediate risk, not high risk. This means not only that her prognosis is better, but her chemo will be less toxic.
We are so happy for her, so grateful to God and so amazed at this whole situation in our lives. Something so dark has brought so many people together in prayer and has touched so many lives and taught us so many lessons in such a short time. A little 11 month-old girl, who right now is bobbing up and down (her dancing) to an electronic version of Yankee Doodle and smiling her 6 tooth grin has taught her mom and dad to value life in a way we never understood before and has touched the hearts of 1000's people, many of whom we do not even know. All I can do is smile. I am a dad, and I could not be happier. That is my little girl.
We cannot thank you all enough for spreading the word and for praying constantly for us and Keira Grace.
The journey we are about to embark on is still a long one on a difficult road, but today the sun is a little brighter, the path a little flatter, and our hope a little stronger.
Great is His faithfulness
Jason, Erin & Keira Grace
March 26, 2007 - Waiting
As we wait for the doctor to call and give us the results of the biopsy, I am feeling a little scared, a little numb, a little hopeful . . . It is hard to express how I feel right now. I know how important these results are, and yet I also know and have been reminded that they mean nothing. Our family needs the results to be good. We need to hear the doctor give us good news. We know she will still have to go through chemo. We know that even with good news, it is not a sure thing, but our hearts and our spirits need to hear that good news.
We also know that while our family needs the results to be good, God does not. If God is going to heal our little girl, we must believe that He will heal her no matter the prognosis. Percentages mean nothing to God. I know this in my mind and my heart is trying to hold onto to this truth, but it is hard at this moment in time when it is my daughter's life that is the percentage we are talking about.
All morning I have been singing this song:
Great is Thy faithfulness, O God my Father;
There is no shadow of turning with Thee;
Thou changest not, Thy compassions, they fail not;
As Thou hast been, Thou forever will be.
Great is Thy faithfulness! Great is Thy faithfulness!
Morning by morning new mercies I see.
All I have needed Thy hand hath provided;
Great is Thy faithfulness, Lord, unto me!
My singing is not yet because I feel this truth completely in my heart and emotions, but because I know it is true, because I need it to be true, because God is truly all we have at this moment.
Please continue to pray. Thank you for standing with us. Thank you to everyone who keeps emailing us and calling us. You may never know how much it means to us.
Jason, Erin & Keira
We also know that while our family needs the results to be good, God does not. If God is going to heal our little girl, we must believe that He will heal her no matter the prognosis. Percentages mean nothing to God. I know this in my mind and my heart is trying to hold onto to this truth, but it is hard at this moment in time when it is my daughter's life that is the percentage we are talking about.
All morning I have been singing this song:
Great is Thy faithfulness, O God my Father;
There is no shadow of turning with Thee;
Thou changest not, Thy compassions, they fail not;
As Thou hast been, Thou forever will be.
Great is Thy faithfulness! Great is Thy faithfulness!
Morning by morning new mercies I see.
All I have needed Thy hand hath provided;
Great is Thy faithfulness, Lord, unto me!
My singing is not yet because I feel this truth completely in my heart and emotions, but because I know it is true, because I need it to be true, because God is truly all we have at this moment.
Please continue to pray. Thank you for standing with us. Thank you to everyone who keeps emailing us and calling us. You may never know how much it means to us.
Jason, Erin & Keira
Saturday, March 24, 2007
March 24, 2007 - Pictures of Keira
We wanted to share some pictures of our beautiful little girl with everyone. Please go to: www.keirabo.com to see lots of her pictures.
Keira has done so well today. Even after the surgery, she is still laughing and playing like nothing is bothering her. We were worried that the port would really cause her a lot of discomfort or even pain, but right now it does not seem to bother her in the least. Praise God for that.
Please enjoy the pictures and thank you so much for taking the time to pray for our family and to send us encouraging emails. We have recieved so many emails. It means a lot to us.
Jason, Erin, & Keira
Keira has done so well today. Even after the surgery, she is still laughing and playing like nothing is bothering her. We were worried that the port would really cause her a lot of discomfort or even pain, but right now it does not seem to bother her in the least. Praise God for that.
Please enjoy the pictures and thank you so much for taking the time to pray for our family and to send us encouraging emails. We have recieved so many emails. It means a lot to us.
Jason, Erin, & Keira
Friday, March 23, 2007
March 23, 2007
Keira is sleeping right now (2:00 pm). She was a wonderfully brave little girl this morning. At 7:30 am, they did surgery. She had two procedures done. First, she had a port placed that will serve as the entrance point for the chemo so they will not have to place an IV each time. Second, she had a biopsy of the lymph node to determine the type of tissue of the cancer. This biopsy appears to have been successful, which is such amazing news because if it had not been successful, they might have had to open her up in order to get a sample of the tissue directly from the mass in her chest. We are so grateful to God that this was successful.
This Monday is a very important day. We will get the results of the biopsy back. Based on those results, the intensity of the chemo will be determined. We are desparately praying for favorable results so that Keira's chemo treatment can be less intense, which will mean negative side affects should be less from the treatments.
They will likely begin the chemo treatments this Wednesday.
Though nothing has gotten any easier, we really needed the small victory this morning. It is little things like this that help remind me that God is working.
Thank you all again,
Jason, Erin & Keira
This Monday is a very important day. We will get the results of the biopsy back. Based on those results, the intensity of the chemo will be determined. We are desparately praying for favorable results so that Keira's chemo treatment can be less intense, which will mean negative side affects should be less from the treatments.
They will likely begin the chemo treatments this Wednesday.
Though nothing has gotten any easier, we really needed the small victory this morning. It is little things like this that help remind me that God is working.
Thank you all again,
Jason, Erin & Keira
Wednesday, March 21, 2007
March 21, 2007 - a very long day . . .
Keira got another MRI today to check the spinal canal. It was negative. That is good news. We also had a long talk with the Dr today.
This Friday, Keira will have a port put into her chest. It is kind of like an IV that stays under the skin until the chemo is over. Instead of sticking her each time (which her veins could not handle anyway because of her age), there will be a port just under the skin with a tube attached leading to a mjor vein. Each round of chemo will be administered through this port. The Dr said that it is a little uncomfortable at first, but that kids do really well with it.
This Friday they will also do a biopsy to determine the type of tissue of the cancer. This is a very important test. A favorable tissue means a better prognosis. Please pray for this.
Her chemo will begin either this weekend or by wednesday of next week. On this first round we will be spending 3-4 days living in the hospital. Then, every three weeks after that, she will have another round. Each time she gets a round of chemo, we will spend 2-5 days living in the hospital. Then we get to take her home for at least 2 weeks, which is nice.
We got to go up to the floor where the cancer patients stay. For a hospital, it is pretty nice. There is a very cool playroom with lots of toys for Keira. The people we talked with were also very nice. And while we are not looking forward to this, if we have to live in a hospital for a few days at a time, this is a pretty good place.
So, we have a very important procedure this Friday along with a port placement and maybe even the beginning of chemo.
It has been a very long day. We were supposed to go in at 11:00 am and be gone by about 2:00 pm. We got there at 11:00 am and sat in the waiting room with our very hungry 11-month old for 1 hour and 50 minutes (she is not allowed to eat for 6 hours before the scans). That was less than fun . . . then the hour long scan she went through took 1.5 hours at which time a nurse came and told us it would take another hour. So, we went upstairs to meet with the doctor. When we got upstairs, they called us and told us Keira would be done in 15 minutes. So we headed back down. Before we even got off the elavator, they called again to tell us she was awake. We were very confused by the whole thing.
So after 4 hours, she was finally done and we went and talked with the Dr for about an hour. By this time, we were all very ready to go home and eat something. So we walked the mile or so to our car, and I reached into my pocket to grab the keys but found only pocket lint. We frantically searched for our keys, but they were nowhere to be found. So we treked back to the hospital, retraced out steps and checked with house keeping, security, nurses, and random people walking down the halls, but our keys were lost. To really make this exciting, you know those little credit cards that banks give to place on a key ring? Erin's bank card was on her key ring. We called the bank to tell them we lost it and put a stop on it, but wouldn't you now it, the card had already been used. Yes, someone robbed the parents of a cancer patient in a children's hospital (and some poeple wonder if sin is real). The thief had gone to Kroger and spent $10.87! The bank put a stop on the card, a friend brought us a spare key and we rolled into our garage about 8:30 pm. What a day!
Thank you all for standing with us. We love you. We appreciate you. We need you.
Jason, Erin & Keira
This Friday, Keira will have a port put into her chest. It is kind of like an IV that stays under the skin until the chemo is over. Instead of sticking her each time (which her veins could not handle anyway because of her age), there will be a port just under the skin with a tube attached leading to a mjor vein. Each round of chemo will be administered through this port. The Dr said that it is a little uncomfortable at first, but that kids do really well with it.
This Friday they will also do a biopsy to determine the type of tissue of the cancer. This is a very important test. A favorable tissue means a better prognosis. Please pray for this.
Her chemo will begin either this weekend or by wednesday of next week. On this first round we will be spending 3-4 days living in the hospital. Then, every three weeks after that, she will have another round. Each time she gets a round of chemo, we will spend 2-5 days living in the hospital. Then we get to take her home for at least 2 weeks, which is nice.
We got to go up to the floor where the cancer patients stay. For a hospital, it is pretty nice. There is a very cool playroom with lots of toys for Keira. The people we talked with were also very nice. And while we are not looking forward to this, if we have to live in a hospital for a few days at a time, this is a pretty good place.
So, we have a very important procedure this Friday along with a port placement and maybe even the beginning of chemo.
It has been a very long day. We were supposed to go in at 11:00 am and be gone by about 2:00 pm. We got there at 11:00 am and sat in the waiting room with our very hungry 11-month old for 1 hour and 50 minutes (she is not allowed to eat for 6 hours before the scans). That was less than fun . . . then the hour long scan she went through took 1.5 hours at which time a nurse came and told us it would take another hour. So, we went upstairs to meet with the doctor. When we got upstairs, they called us and told us Keira would be done in 15 minutes. So we headed back down. Before we even got off the elavator, they called again to tell us she was awake. We were very confused by the whole thing.
So after 4 hours, she was finally done and we went and talked with the Dr for about an hour. By this time, we were all very ready to go home and eat something. So we walked the mile or so to our car, and I reached into my pocket to grab the keys but found only pocket lint. We frantically searched for our keys, but they were nowhere to be found. So we treked back to the hospital, retraced out steps and checked with house keeping, security, nurses, and random people walking down the halls, but our keys were lost. To really make this exciting, you know those little credit cards that banks give to place on a key ring? Erin's bank card was on her key ring. We called the bank to tell them we lost it and put a stop on it, but wouldn't you now it, the card had already been used. Yes, someone robbed the parents of a cancer patient in a children's hospital (and some poeple wonder if sin is real). The thief had gone to Kroger and spent $10.87! The bank put a stop on the card, a friend brought us a spare key and we rolled into our garage about 8:30 pm. What a day!
Thank you all for standing with us. We love you. We appreciate you. We need you.
Jason, Erin & Keira
Tuesday, March 20, 2007
March 20, 2007 - Once again we need you
I can hardly type this out, but we so desperately need God and your prayers that I must write this. Though we thought everything looked good, we got the results back tonight of the bone marrow biopsy, which we thought would be negative because nothing showed up on the bone scan Monday. However, it was not negative. The cancer has spread to her bones and she now is considered to have stage 4 cancer. Surgery is no longer an option right now.
She now has 3 more tests she must undergo. The MRI of her spine is tomorrow. The MIBG scan (we'll explain this later) is next week. But the one we most fear is coming up in a few days. It deals with the tissue of the cancer. She will need to have a surgical sample of the tumor taken for evaluation under the microscope. It is this test that will have a major impact on her prognosis, so please keep her in your prayers.
I have felt lost at times, angry, sad, and even peaceful. Right now Erin and I both are simply scared, but doing everything we can to hold on to God through this.
Jason, Erin & Keira
She now has 3 more tests she must undergo. The MRI of her spine is tomorrow. The MIBG scan (we'll explain this later) is next week. But the one we most fear is coming up in a few days. It deals with the tissue of the cancer. She will need to have a surgical sample of the tumor taken for evaluation under the microscope. It is this test that will have a major impact on her prognosis, so please keep her in your prayers.
I have felt lost at times, angry, sad, and even peaceful. Right now Erin and I both are simply scared, but doing everything we can to hold on to God through this.
Jason, Erin & Keira
Monday, March 19, 2007
March 19, 2007 - Prayer Service
What an amazing night! I can hardly describe what it means to us to have so many of our friends join us in praying for Keira tonight at church. It was a beautiful service and made us both cry. We cannot thank those of you who could make it enough for coming. We needed that so much.
Keira was great during the service. Since the service was for her, we let her do whatever she wanted. At one point, there was a reading be given from the gospels where Jesus says to let the little children come to him. A moment before that reading began, we set Keira on the floor because that is where she wanted to be. As those words were being read, she crawled out into the middle of the walkway right in front of the priest who was reading the passage and then looked up at everyone in the pews. It could not have been more adorable or perfect.
In the middle of the service, everyone knelt and we prayed together for healing. During this part, Keira looked at everybody and promptly crawled up the steps to the altar. She spent the whole time crawling around the altar pondering the designs on the carpet and making soft little noises while every was praying. It was very cute.
At the end of the service, Erin, Keira and I went up to the front where some good friends came and circled around us, laid hands on us and prayed for us. Right in the middle of someone pouring out their heart on our behalf, Keira let our a very loud and rather long burp. It was hilarious (and some how the person praying was able to keep going).
This day, especially this night, has helped me to find a peace I have not known since this whole thing began. I believe in a God who holds all things in his hands. If I truly believe in this God, I must trust Him. And right now I do. I do not know what the future holds, but I know that my God has the future under control. And I choose to believe in Him.
When peace like a river attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, thou hast taught me to say,
"It is well, it is well with my soul."
It is well with my soul . . .
good night
Keira was great during the service. Since the service was for her, we let her do whatever she wanted. At one point, there was a reading be given from the gospels where Jesus says to let the little children come to him. A moment before that reading began, we set Keira on the floor because that is where she wanted to be. As those words were being read, she crawled out into the middle of the walkway right in front of the priest who was reading the passage and then looked up at everyone in the pews. It could not have been more adorable or perfect.
In the middle of the service, everyone knelt and we prayed together for healing. During this part, Keira looked at everybody and promptly crawled up the steps to the altar. She spent the whole time crawling around the altar pondering the designs on the carpet and making soft little noises while every was praying. It was very cute.
At the end of the service, Erin, Keira and I went up to the front where some good friends came and circled around us, laid hands on us and prayed for us. Right in the middle of someone pouring out their heart on our behalf, Keira let our a very loud and rather long burp. It was hilarious (and some how the person praying was able to keep going).
This day, especially this night, has helped me to find a peace I have not known since this whole thing began. I believe in a God who holds all things in his hands. If I truly believe in this God, I must trust Him. And right now I do. I do not know what the future holds, but I know that my God has the future under control. And I choose to believe in Him.
When peace like a river attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, thou hast taught me to say,
"It is well, it is well with my soul."
It is well with my soul . . .
good night
March 19, 2007 - GOOD NEWS!
We received very good news today: the cancer has not spread to her bones! Keira went in for her bone scane today. She was so good. She slept right there on the machine for 45 minutes while they scanned her. I was even able to shift her around some when they needed it and she just slept right through it. Some parents may be thinking this is not a big deal because your children at 1 year of age could sleep through anything. Keira is a very light sleeper and refuses to sleep anywhere except her bed, our bed, the car or on mom. Any other place, she just wakes up screaming. But today, our little girl slept right through it all on that machine. It was amazing!
So, after nearly 2 weeks, we have finally finished the tests that determine the extent of the cancer. Now we can actually say it is centralized. The cancer has not spread. We thank God for this. And we thank everyone who has been so diligent in praying for us. This means we can finally begin to work out a treatment plan. That should begin Wednesday.
We also found out today that there is a possibility that surgery might be an option. The doctors now believe that they might be able to surgically remove the cancer. We do not know for sure, but it is at least a possibility. We would appriciate prayer for this. It would be wonderful if Keira did not have to go through an extended period of chemotherapy because the doctors could remove some or all of the cancer through surgery.
That is all for now. Thank you everyone again. The emails continue to come as do cards and even presents (Keira got 3 ducks today). From the bottom of our hearts we are forever grateful
Jason, Erin & Keira
So, after nearly 2 weeks, we have finally finished the tests that determine the extent of the cancer. Now we can actually say it is centralized. The cancer has not spread. We thank God for this. And we thank everyone who has been so diligent in praying for us. This means we can finally begin to work out a treatment plan. That should begin Wednesday.
We also found out today that there is a possibility that surgery might be an option. The doctors now believe that they might be able to surgically remove the cancer. We do not know for sure, but it is at least a possibility. We would appriciate prayer for this. It would be wonderful if Keira did not have to go through an extended period of chemotherapy because the doctors could remove some or all of the cancer through surgery.
That is all for now. Thank you everyone again. The emails continue to come as do cards and even presents (Keira got 3 ducks today). From the bottom of our hearts we are forever grateful
Jason, Erin & Keira
Sunday, March 18, 2007
March 18, 2007
Since asking people to email us or in some way drop us a note of encouragment, we have had 10-15 emails a day. It has been amazingly inspirational for us. Thank you all so much. Sitting down throughout the day and getting email after email of people telling us they are thinking of us and praying for us has truly touched our hearts. We are forever grateful
Jason, Erin & Keira
Jason, Erin & Keira
March 18, 2007
We have a few more results to share. There is more good news, but also some potential discouraging news. We have the results back from the MRI. The cancer has not spread. While they still have to check the bones, the cancer has not invaded other parts of her body (stomach, liver, brain, etc). That is truly good news.
On the other side, the cancer has crossed the midline of the chest, which is not good. The doctor has said she has stage 3 cancer. It is a higher risk category than we had originally hoped for (the preliminary diagnosis from the first CT of the chest was stage 2). We do not yet know for sure what the surgical options are, if any, nor do we know what kind of chemo she will likely be getting. Tentatively, the doctor has said they are thinking of giving her 4-8 rounds of chemo about 3 weeks apart. We do not know if she will be hospitalized during this or not yet.
Tomorrow there is a bone scan to hopefully rule out that the cancer has spread to the bones. Sometime this week we are supposed to sit down with the doctor and determine a course of treatment. When we know more, we will write.
Jason, Erin & Keira
On the other side, the cancer has crossed the midline of the chest, which is not good. The doctor has said she has stage 3 cancer. It is a higher risk category than we had originally hoped for (the preliminary diagnosis from the first CT of the chest was stage 2). We do not yet know for sure what the surgical options are, if any, nor do we know what kind of chemo she will likely be getting. Tentatively, the doctor has said they are thinking of giving her 4-8 rounds of chemo about 3 weeks apart. We do not know if she will be hospitalized during this or not yet.
Tomorrow there is a bone scan to hopefully rule out that the cancer has spread to the bones. Sometime this week we are supposed to sit down with the doctor and determine a course of treatment. When we know more, we will write.
Jason, Erin & Keira
Saturday, March 17, 2007
March 17, 2007
So many people have asked us what they can do for us. Yesterday, we figured something out. Through this week, we have gotten a number of wonderful emails and cards that have really helped us emotionally. Erin said that a few times she was feeling really discouraged, came to the computer, read an email from someone telling us they love us and were praying for us, and it lifted her spirits.
We want to say that we truly appreciate those emails and cards more than you may ever realize. If you would like to do something small for us, we would simply love to hear from you in a short email or card or even a response to a blog.
Email: jason-erin@sbcglobal.net
Address: 4124 West Creek Ct, Dallas, TX 75287
Thank you
Jason, Erin & Keira
We want to say that we truly appreciate those emails and cards more than you may ever realize. If you would like to do something small for us, we would simply love to hear from you in a short email or card or even a response to a blog.
Email: jason-erin@sbcglobal.net
Address: 4124 West Creek Ct, Dallas, TX 75287
Thank you
Jason, Erin & Keira
Friday, March 16, 2007
March 16, 2007 - Prayer Service
This Monday (3/19) at 6:30 pm at Christ Church, there will be a prayer service for Keira. We want to invite anyone who has the time and would like to join with us as we pray together for her.
Christ Church Address
4550 Legacy Dr.
Plano, TX 75024
The service will be in held in the chapel.
Thank you all again,
Jason, Erin & Keira
Christ Church Address
4550 Legacy Dr.
Plano, TX 75024
The service will be in held in the chapel.
Thank you all again,
Jason, Erin & Keira
March 16, 2007 - Second round of tests
Our brave little girl went through a lot of tests today. We spent 8 hours at the hospital, but thankfully we are closer to setting up a plan of treatment for her. Today she had a CT, MRI, blood work, and a bone marrow biopsy (actually 2 - 1 in each hip). She is very groggy right now and her throat is a little soar from the intubation (a tube down her airway), but she is doing exceptionally well for an 11 month-old who just had all that done to her.
Sadly, today is her 11 month birthday. And while I can think of a million ways she would probably rather spend her birthday, there is some good news to report: they saw no sign of the cancer in her abdomen or pelvis! So, at least we know for sure that it has not spread to those regions. And while there is still more to look at, that is something to rejoice in. Thank you all for your prayers and praise God for a good start.
There is still more to come, including a sample of the tissue, which will determine the treatment plan. Please continue to pray.
Thank you,
Jason, Erin & Keira
Sadly, today is her 11 month birthday. And while I can think of a million ways she would probably rather spend her birthday, there is some good news to report: they saw no sign of the cancer in her abdomen or pelvis! So, at least we know for sure that it has not spread to those regions. And while there is still more to look at, that is something to rejoice in. Thank you all for your prayers and praise God for a good start.
There is still more to come, including a sample of the tissue, which will determine the treatment plan. Please continue to pray.
Thank you,
Jason, Erin & Keira
Thursday, March 15, 2007
March 15, 2007 - Thank you all
It is amazing the number of people that we have heard of who are praying for Keira. As a testimony and encouragment, I want to list the gorups we know about who are praying for us: 5 churches, 3 men's groups, 6 small groups, at least 4 church wide prayer lists, the Jesuit Community, and so many individuals that I cannot keep track of them all. All of this happened in less than a week.
We have also had a number of young men and women offer to provide food for us through the entire ordeal every night of the week, along with cleaning our house and taking care of our dogs. One person gave us a large sum of money to help out during this time. A church is putting together a prayer card to handout that gives basic information on Keira to help remind people to pray for her. Another group has made a prayer shawl. At one church, they actually took the scheduled prayer time for the Sunday morning service and focused completely on Keira. The list just keeps going on, and it has only been a week.
We feel so blessed to have so many people care about us. Even people who do not know us that well are stepping up and offering love and support to us. We cannot tell you all how thankful we are and how blessed we feel. Our familes are doing all they can, but live in different states. However, we do not feel alone. We not only feel our families' love, but we feel the love of church of God. God is using so many people to encourage us and help us through this very difficult time. It is wonderful to be a part of the church, to be a part of a family of believers who truly care even when some of them do not know you that well. This is what Jesus meant when he said to "love one another as I have loved you" -- it is a testimony to what it means to be a believer in Jesus Christ.
To our familes, our friends, and everyone who is praying for us, thank you.
Jason, Erin, & Keira
We have also had a number of young men and women offer to provide food for us through the entire ordeal every night of the week, along with cleaning our house and taking care of our dogs. One person gave us a large sum of money to help out during this time. A church is putting together a prayer card to handout that gives basic information on Keira to help remind people to pray for her. Another group has made a prayer shawl. At one church, they actually took the scheduled prayer time for the Sunday morning service and focused completely on Keira. The list just keeps going on, and it has only been a week.
We feel so blessed to have so many people care about us. Even people who do not know us that well are stepping up and offering love and support to us. We cannot tell you all how thankful we are and how blessed we feel. Our familes are doing all they can, but live in different states. However, we do not feel alone. We not only feel our families' love, but we feel the love of church of God. God is using so many people to encourage us and help us through this very difficult time. It is wonderful to be a part of the church, to be a part of a family of believers who truly care even when some of them do not know you that well. This is what Jesus meant when he said to "love one another as I have loved you" -- it is a testimony to what it means to be a believer in Jesus Christ.
To our familes, our friends, and everyone who is praying for us, thank you.
Jason, Erin, & Keira
March 15, 2007 - A few Questions
One more day and we finally get to start tests (Friday, 3/16/07). We are anxious, but hanging in there. We appreciate so much our familes, friends and the body of Christ, who have been very supportive over this week.
I would like to clarify a few things that have been asked of us.
1. Could this be a ganglioneuroma?
Some neuroblastoma cases can develop into a non-cancerous tumor called ganglioneuroma. This is a benign tumor that in some cases does not even need to be removed because it does not harm the child. Sadly, the doctors are confident that her tumor is neuroblastoma and do not feel that it will progress into a ganglioneuroma.
2. Doesn't neuroblastoma in infants have a good prognosis?
Yes, in children under the age of one year, some tests have shown that 80% of them survived and were doing well after 5 years, but this is dependent upon what the tumor looks like under the microscope as well as where it is in the body when it is found. This gives us some confidence in the final outcome, knowing that 4 out of 5 children survive this, but as parents we are keenly aware of the 1 out of 5 that do not. So, ultimately we are not placing our trust or hope in the percentages, but in the hands of almighty God. Our faith is in Him.
With additional tests that Keira begins tomorrow, we will get more answers, but until we have those tests, this is all we currently know.
We very much continue to covet your prayers and love and support. Again, thank you so much to everyone.
Jason, Erin & Keira
I would like to clarify a few things that have been asked of us.
1. Could this be a ganglioneuroma?
Some neuroblastoma cases can develop into a non-cancerous tumor called ganglioneuroma. This is a benign tumor that in some cases does not even need to be removed because it does not harm the child. Sadly, the doctors are confident that her tumor is neuroblastoma and do not feel that it will progress into a ganglioneuroma.
2. Doesn't neuroblastoma in infants have a good prognosis?
Yes, in children under the age of one year, some tests have shown that 80% of them survived and were doing well after 5 years, but this is dependent upon what the tumor looks like under the microscope as well as where it is in the body when it is found. This gives us some confidence in the final outcome, knowing that 4 out of 5 children survive this, but as parents we are keenly aware of the 1 out of 5 that do not. So, ultimately we are not placing our trust or hope in the percentages, but in the hands of almighty God. Our faith is in Him.
With additional tests that Keira begins tomorrow, we will get more answers, but until we have those tests, this is all we currently know.
We very much continue to covet your prayers and love and support. Again, thank you so much to everyone.
Jason, Erin & Keira
Wednesday, March 14, 2007
March 14, 2007 - Tests scheduled
We are currently waiting for Keira to have a few tests run that will determine her course of treatment. We have finally been scheduled for 2 of those tests. This Friday (3/16/07) Keira will have an MRI (magnetic resonance imaging) and a CT (computed tomography, also called a CAT scan).
These two tests will help determine the extent of the cancer, which will in turn help ascertain the surgical options for Keira. Until they discover the extent of the cancer nothing can be done for treatment.
Next week there will be at least 1 more test. I will write more about that as we get information.
Below you will find a brief discussion on MRI and CT if you want to know a little more about what Keira will be going through.
Thank you all again for your prayers and concern. It means so much to us
Jason, Erin, and Keira
________________________________
What is an MRI?
Magnetic resonance imaging (MRI) uses radiofrequency waves and a strong magnetic field rather than x-rays to provide remarkably clear and detailed pictures of internal organs and tissues. The technique has proven very valuable for the diagnosis of a broad range of pathologic conditions in all parts of the body including cancer. MRI requires specialized equipment and expertise and allows evaluation of some body structures that may not be as visible with other imaging methods.
Organs of the chest and abdomen—including thelungs, liver, kidney, spleen, pancreas and abdominal vessels—can also be examined in high detail with MRI, enabling the diagnosis and evaluation of tumors.
What is a CT?
CT (computed tomography), sometimes called CAT scan, uses special x-ray equipment to obtain image data from different angles around the body and then uses computer processing of the information to show a cross-section of body tissues and organs.
CT imaging is particularly useful because it can show several types of tissue—lung, bone, soft tissue and blood vessels—with great clarity. Using specialized equipment and expertise to create and interpret CT scans of the body, radiologists can more easily diagnose problems such as cancers.
Because it provides detailed, cross-sectional views of all types of tissue, CT is one of the best tools for studying the chest and abdomen. It is often the preferred method for diagnosing many different cancers, including lung, liver and pancreatic cancer, since the image allows a physician to confirm the presence of a tumor and measure its size, precise location and the extent of the tumor's involvement with other nearby tissue. CT examinations are often used to plan and properly administer radiation treatments for tumors, to guide biopsies and other minimally invasive procedures and to plan surgery and determine surgical resectability.
Why do both of these tests? Each test has certain benefits and limitations.
Benefits
MRI:
Images of the soft-tissue structures of the body—such as the heart, lungs, liver and other organs—are clearer and more detailed than with other imaging methods
MRI can help physicians evaluate the function as well as the structure of many organs; The detail makes MRI an invaluable tool in early diagnosis and evaluation of tumors
MRI contrast material is less likely to produce an allergic reaction than the iodine-based materials used for conventional x-rays and CT scanning.
MRI enables the detection of abnormalities that might be obscured by bone with other imaging methods.
MRI provides a fast, noninvasive alternative to x-ray angiography for diagnosing problems of the heart and cardiovascular system.
Exposure to radiation is avoided.
CT
Unlike other imaging methods, CT scanning offers detailed views of many types of tissue including the lungs, bones, soft tissues and blood vessels.
CT scanning is painless, noninvasive and accurate.
CT examinations are fast and simple. For example, in trauma cases they can reveal internal injuries and bleeding quickly enough to help save lives.
Diagnosis made with the assistance of CT can eliminate the need for invasive exploratory surgery and surgical biopsy.
CT scanning can identify normal and abnormal structures, making it a useful tool to guide radiotherapy, needle biopsies and other minimally invasive procedures.
CT has been shown to be a cost-effective imaging tool for a wide range of clinical problems.
Limitations
MRI: Bone is better imaged by conventional x-rays in some cases and CT is preferred for patients with severe bleeding. MRI may not always distinguish between tumor tissue and edema fluid and does not detect calcium when this is present within a tumor. In most cases the examination is safe for patients with metal implants, with the exception of a few types of implants, so patients should inform the technician of an implant prior to the test. The examination must be used cautiously in early pregnancy. MRI typically costs more than CT scanning.
CT: Very fine soft-tissue details in areas such as the knee or shoulder can be more readily and clearly seen with magnetic resonance imaging (MRI). The exam is not generally indicated for pregnant women.
So, both tests are needed in this case and offer the doctors a more accurate picture of what is taking place inside of Keira.
Taken from:
http://www.radiologyinfo.org/en/info.cfm?pg=bodymr&bhcp=1
http://www.radiologyinfo.org/en/info.cfm?pg=bodyct&bhcp=1
These two tests will help determine the extent of the cancer, which will in turn help ascertain the surgical options for Keira. Until they discover the extent of the cancer nothing can be done for treatment.
Next week there will be at least 1 more test. I will write more about that as we get information.
Below you will find a brief discussion on MRI and CT if you want to know a little more about what Keira will be going through.
Thank you all again for your prayers and concern. It means so much to us
Jason, Erin, and Keira
________________________________
What is an MRI?
Magnetic resonance imaging (MRI) uses radiofrequency waves and a strong magnetic field rather than x-rays to provide remarkably clear and detailed pictures of internal organs and tissues. The technique has proven very valuable for the diagnosis of a broad range of pathologic conditions in all parts of the body including cancer. MRI requires specialized equipment and expertise and allows evaluation of some body structures that may not be as visible with other imaging methods.
Organs of the chest and abdomen—including thelungs, liver, kidney, spleen, pancreas and abdominal vessels—can also be examined in high detail with MRI, enabling the diagnosis and evaluation of tumors.
What is a CT?
CT (computed tomography), sometimes called CAT scan, uses special x-ray equipment to obtain image data from different angles around the body and then uses computer processing of the information to show a cross-section of body tissues and organs.
CT imaging is particularly useful because it can show several types of tissue—lung, bone, soft tissue and blood vessels—with great clarity. Using specialized equipment and expertise to create and interpret CT scans of the body, radiologists can more easily diagnose problems such as cancers.
Because it provides detailed, cross-sectional views of all types of tissue, CT is one of the best tools for studying the chest and abdomen. It is often the preferred method for diagnosing many different cancers, including lung, liver and pancreatic cancer, since the image allows a physician to confirm the presence of a tumor and measure its size, precise location and the extent of the tumor's involvement with other nearby tissue. CT examinations are often used to plan and properly administer radiation treatments for tumors, to guide biopsies and other minimally invasive procedures and to plan surgery and determine surgical resectability.
Why do both of these tests? Each test has certain benefits and limitations.
Benefits
MRI:
Images of the soft-tissue structures of the body—such as the heart, lungs, liver and other organs—are clearer and more detailed than with other imaging methods
MRI can help physicians evaluate the function as well as the structure of many organs; The detail makes MRI an invaluable tool in early diagnosis and evaluation of tumors
MRI contrast material is less likely to produce an allergic reaction than the iodine-based materials used for conventional x-rays and CT scanning.
MRI enables the detection of abnormalities that might be obscured by bone with other imaging methods.
MRI provides a fast, noninvasive alternative to x-ray angiography for diagnosing problems of the heart and cardiovascular system.
Exposure to radiation is avoided.
CT
Unlike other imaging methods, CT scanning offers detailed views of many types of tissue including the lungs, bones, soft tissues and blood vessels.
CT scanning is painless, noninvasive and accurate.
CT examinations are fast and simple. For example, in trauma cases they can reveal internal injuries and bleeding quickly enough to help save lives.
Diagnosis made with the assistance of CT can eliminate the need for invasive exploratory surgery and surgical biopsy.
CT scanning can identify normal and abnormal structures, making it a useful tool to guide radiotherapy, needle biopsies and other minimally invasive procedures.
CT has been shown to be a cost-effective imaging tool for a wide range of clinical problems.
Limitations
MRI: Bone is better imaged by conventional x-rays in some cases and CT is preferred for patients with severe bleeding. MRI may not always distinguish between tumor tissue and edema fluid and does not detect calcium when this is present within a tumor. In most cases the examination is safe for patients with metal implants, with the exception of a few types of implants, so patients should inform the technician of an implant prior to the test. The examination must be used cautiously in early pregnancy. MRI typically costs more than CT scanning.
CT: Very fine soft-tissue details in areas such as the knee or shoulder can be more readily and clearly seen with magnetic resonance imaging (MRI). The exam is not generally indicated for pregnant women.
So, both tests are needed in this case and offer the doctors a more accurate picture of what is taking place inside of Keira.
Taken from:
http://www.radiologyinfo.org/en/info.cfm?pg=bodymr&bhcp=1
http://www.radiologyinfo.org/en/info.cfm?pg=bodyct&bhcp=1
Tuesday, March 13, 2007
March 13, 2007 - Info on Neuroblastoma
Neuroblastoma
Definition: Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children . It is rarely found in children older than 10 years. The cells of this cancer usually resemble very primitive developing nerve cells found in an embryo or fetus. (The term neuro indicates "nerves," while blastoma refers to a cancer that affects immature or developing cells).
Causes and risk factors: Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
The cause of the tumor is unknown. Neuroblastoma is by far the most common cancer in infants and the third most common type of cancer in children. There are approximately 650 new cases of neuroblastoma each year. This number has held steady for many years.
Boys are somewhat more likely to develop neuroblastomas than girls. For every 6 cases in male children, there are 5 in females.
The average age at the time of diagnosis is about 17 months. Around one-third of cases are diagnosed by the first year. Nearly 90% of cases are diagnosed by age 5. And about 2% of cases are found in people over the age of 10, including in some adults. In rare cases, neuroblastoma is detected by ultrasound even before birth.
Treatment varies depending on the location of the tumor, the extent of tumor spread and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation Therapy may also be used.
Complications
Spread of the tumor
Damage and loss of function of involved organ(s): Kidney Failure Liver failure; Loss of blood cells produced by the bone marrow; Decreased resistance to infection; Other organ system failures
Expectations (prognosis) The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign gangalioneuroma (a tumor of the peripheral nervous system) that can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment is variable. Treatment is often successful if the cancer has not spread, but if there has been spread to other areas, neuroblastoma is much harder to cure.
Information taken from:
http://www.nlm.nih.gov/medlineplus/ency/article/001408.htm; http://www.cancer.org/docroot/cri/content/cri_2_4_1x_what_are_the_key_statist...
There is a little information on the cancer.
Definition: Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children . It is rarely found in children older than 10 years. The cells of this cancer usually resemble very primitive developing nerve cells found in an embryo or fetus. (The term neuro indicates "nerves," while blastoma refers to a cancer that affects immature or developing cells).
Causes and risk factors: Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
The cause of the tumor is unknown. Neuroblastoma is by far the most common cancer in infants and the third most common type of cancer in children. There are approximately 650 new cases of neuroblastoma each year. This number has held steady for many years.
Boys are somewhat more likely to develop neuroblastomas than girls. For every 6 cases in male children, there are 5 in females.
The average age at the time of diagnosis is about 17 months. Around one-third of cases are diagnosed by the first year. Nearly 90% of cases are diagnosed by age 5. And about 2% of cases are found in people over the age of 10, including in some adults. In rare cases, neuroblastoma is detected by ultrasound even before birth.
Treatment varies depending on the location of the tumor, the extent of tumor spread and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation Therapy may also be used.
Complications
Spread of the tumor
Damage and loss of function of involved organ(s): Kidney Failure Liver failure; Loss of blood cells produced by the bone marrow; Decreased resistance to infection; Other organ system failures
Expectations (prognosis) The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign gangalioneuroma (a tumor of the peripheral nervous system) that can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment is variable. Treatment is often successful if the cancer has not spread, but if there has been spread to other areas, neuroblastoma is much harder to cure.
Information taken from:
http://www.nlm.nih.gov/medlineplus/ency/article/001408.htm; http://www.cancer.org/docroot/cri/content/cri_2_4_1x_what_are_the_key_statist...
There is a little information on the cancer.
March 9, 2007
Thank you all for your prayers and support. We have had so many people call us, bring us food, and offer to take care of us.
Friday night March 9, 2007 our little girl was diagnosed with cancer. It was the most difficult news either one of us had ever heard. That evening we could barely hold it together and honestly thought it was nightmare we would eventually wake from. And while it is a nightmare, we are not going to wake up. This is real. It is scary. She is our little girl and we love her more than we can express in words. Right now all we can do is believe that our merciful and loving God will heal her.
We are writing this blog to help keep all of the people who have been so good to us and are praying for us accurately up to date on what is happening.
All we know right now is that Keira has cancer. It is neuroblastoma (if you want more information on this, see the next blog). That was confirmed Monday. We are now waiting for the hospital to schedule other tests. At this point, all we can do is continue to wait and enjoy our daughter. Until all the tests are complete, they cannot set up a treatment schedule for her.
The thing that we are most grateful for right now is that Keira does not seem to be affected by the cancer. She is playing and laughing and truly enjoying herself. We are so thankful we do not have to explain to her what is happening and that she will not remember any of this when she gets older.
Please continue to pray for us. There are many kids who make it through neuroblastoma, but not all of them. Pray for healing. Pray for peace. Pray for God's presence to be felt.
Thank you all so much,
Jason, Erin, & Keira
Friday night March 9, 2007 our little girl was diagnosed with cancer. It was the most difficult news either one of us had ever heard. That evening we could barely hold it together and honestly thought it was nightmare we would eventually wake from. And while it is a nightmare, we are not going to wake up. This is real. It is scary. She is our little girl and we love her more than we can express in words. Right now all we can do is believe that our merciful and loving God will heal her.
We are writing this blog to help keep all of the people who have been so good to us and are praying for us accurately up to date on what is happening.
All we know right now is that Keira has cancer. It is neuroblastoma (if you want more information on this, see the next blog). That was confirmed Monday. We are now waiting for the hospital to schedule other tests. At this point, all we can do is continue to wait and enjoy our daughter. Until all the tests are complete, they cannot set up a treatment schedule for her.
The thing that we are most grateful for right now is that Keira does not seem to be affected by the cancer. She is playing and laughing and truly enjoying herself. We are so thankful we do not have to explain to her what is happening and that she will not remember any of this when she gets older.
Please continue to pray for us. There are many kids who make it through neuroblastoma, but not all of them. Pray for healing. Pray for peace. Pray for God's presence to be felt.
Thank you all so much,
Jason, Erin, & Keira
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3/9/2008 - Celebrating one year from diagnosis
Stylin at the Easter Egg Hunt!
2 years and I still love cake!
First trip to the zoo - a great reward after a long day at Childrens!
- and I even got to hold a bird!
I see how long it's taking mommy to get through - I'd better get started now!
PIGTAILS!
First day of school with best friend Ellie
How am I going to stick this landing?
The Fam
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