It has been two days since her infusion. She has thrown up 2 times and her appetite is down a little, but her attitude is light and joyful. She has spent the day playing and dancing and babbling to herself. Erin and I are both so thrilled at how well she is handling this so far.
I think this stage is going to be very difficult. It will months before we will know whether or not the chemo is effective. Every week, she will get a shot. Three days a week, she has to have medicine. Once a week, she has to have blood work done. Every three weeks, she will have chemo. If she gets sick at all, she will have to be admitted into the hospital. As we go through all of this on a weekly basis, we will not get to see whether or not it is making a difference. I believe these next few months are going to be so difficult because we will not know whether she is being cured until after the forth round when they do scans again.
For now, we must really trust God on a daily basis and believe that He hears the cries of His people. We express our graditude for those who remain faithful to Keira and continue to email us. Over the next few months there will be no big news, no sad news, no good news, no news at all. I will continue to write, but cannot tell you if she is better or not. This will be a true test. Please continue to pray, and now and then please shoot us a short email letting us know you are praying. Every email (and praise God there have been a lot of them!) reminds us we are not fighting this alone. And that gives us strength.
As always, we are in your debt and we push on in faith believing that God will heal our girl in His mercy and love and through our prayers and yours,
Jason, Erin & Keira
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3/9/2008 - Celebrating one year from diagnosis
Stylin at the Easter Egg Hunt!
2 years and I still love cake!
First trip to the zoo - a great reward after a long day at Childrens!
- and I even got to hold a bird!
I see how long it's taking mommy to get through - I'd better get started now!
PIGTAILS!
First day of school with best friend Ellie
How am I going to stick this landing?
The Fam
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4 comments:
Babies are so resilient, as you are finding out. Thank God! Nearly 7 years ago my youngest sister gave birth to Alex who was immediately whisked away to Childrens' Hospital National Medical Center, here in Wash., DC, 60 miles from his home in Maryland. He was born with severe genetic anomylies, one of which left his airway connected to his esophagus, making swallowing and breathing nearly impossible. For 3 months, the doctors performed so many surgeries and "procedures" I lost count and they worried that he might never walk. That tiny little boy kept alive by tubes and wired to monitors is now a robust nearly 7 year old who runs us all ragged! God DOES hear prayers and Keira is close to His heart as she and you battle this disease. Your family will be in my prayers, too.
Just wanted to let you all know that our Sunday School Class at Parkway Hills Baptist Church is praying for you. We are asking for you to feel God's hand on you at all times. Keep up your faith and know a group of people are praying for you daily.Keira is such at beautiful little girl. Thank you for the updates on the blog. They minister to me daily.
Hi, I found you through "Texas Juggler - Great Pretender". I wanted to let you know that I too will be praying for all of you as you go through this.
-S.
It'll be long, and weary and the days will drag on and be difficult at times, but you are not alone in this journey. We're here for you and standing in the gap for you in prayer and love. Your daily updates minister to me. God is using you in ways that you may not even know. Thank you for being available for Him.
Rebecca Jones for all the Joneses
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