Thursday, May 10, 2007

May 10, 2007 - The Next Round

Nine hours on Wedneday . . . 5 hours today . . . 5 hours tomorrow . . . and another round over.

We are close to overcoming the third round of chemo and Keira is doing amazing! Her last round was so horrible, but so far this round, though long, has really not been bad. In a way you could almost say it has been good. What do I mean? Keira actually slept through the night last night for the first time in over 8 weeks. It was beautiful. Not only that, but she has not thrown up yet and she even seems a little happier, a little brighter than she has been in weeks. We do not understand it, but we are not complaining.

On top of all that, she is standing up on her own!!! On her own!!! It started as kind of a trick. We knew she could balance because she would accidentally do it on occasion. So, we started standing her up and handing her pieces of bread. She got so engrossed in the bread that she forgot that no one was holding her up. Eventually, she would look around and suddenly her eyes would grow wide and you could see the recognition on that precious little face that she was in fact holding herself up and she would promptly fall on her butt. However, in the last day or so, she has discovered that she can in fact stand up on her own without help. Tonight, she was standing at her little music table. She would play a song, lean back away from the table, lift her hands over head and swing those cute little arms around like a minature cheerleader and then smile. I think she is actually enjoying standing up.

Finally, while she has said a few words by now such as duck, dog, dada, mama, fish and shoe, none of those words have been real clear. Duck is "du" and dog is "do" and shoe is "sh" -- well, she has really said a word now. Her first real word is "NO!" -- and she says it very emphatically and very uses it very appropriately. She even swings her arm at you while she says it. That's our sweet little angel : )

For everyone who has supported us, we love you and we thank you and we need you and we want you to know that our daughter means more to us than anything in this world and when you do something for her, you do something for us that we will never be able to fully thank you for, never be able to really express how much it means to us. Thank you for helping us take care of our baby.

Jason, Erin and Keira Grace

5 comments:

Anonymous said...

Happy for all of you. Erin may your Mother's Day be filled with blessings. All of are lifted up in prayers.

Love,
Maggie

Anonymous said...

Happy Mother's Day Erin! We are praying that this round is much easier on Keira and that your Mother's Day is filled with such joy!
Your little girl is just so precious. We love you all!
Alan, Melanie and Rebekah

Unknown said...

We miss you in the Church nursery.
Lots of Love and Prayers
Robbie Lee

The Preister's said...

this post made me cry! I fully understand the 'biggness' of her standing on her own. I am so happy for you. I pray that this treatment is easier on her than the last.

best of luck!

Anonymous said...

I am amazed by your strength. know that keira is always in my prayers. she is one of the most precious little girls i have seen. and even though i know it is crazy difficult for you to write, the updates mean so much to me and the family. we love you guys and are praying for you.

About Me

At the age of 10 months, Keira was diagnosed with stage IV neuroblastoma. She has completed 4 rounds of chemotherapy and 2 surgeries. She has had a wonderful response to therapy and now has only a small mass left in her chest.

3/9/2008 - Celebrating one year from diagnosis

Stylin at the Easter Egg Hunt!

2 years and I still love cake!

First trip to the zoo - a great reward after a long day at Childrens!

- and I even got to hold a bird!

I see how long it's taking mommy to get through - I'd better get started now!

PIGTAILS!

First day of school with best friend Ellie

How am I going to stick this landing?

The Fam

Keira's first cake

Laughter

Before

Before

Daddy & Me

Daddy & Me
Before