Tuesday, July 17, 2007

July 17, 2007 - The Phone Call

One of the interesting things about climbing up a mountain is how each time you think you have reached the peak, you arrive at the top only to find another peak waiting for you (sometimes laughing at you I think). That is where we are right now. With every step we take on this journey, we keep thinking we have finally reached the top. In this case, we agonized over surgery, but we made the choice, Keira went in for the operation, and everything went very well. However, we wanted this to be the end. We truly hoped this would be the end. When they were only able to get a biopsy, we hoped that the tissue sample would show that the tumor was dead. We reached a peak and simply wanted more than anything for Keira to be done, to be healed, to be finished, to not have to go to anymore doctors, not have to get poked or stuck anymore, not have to have anymore more surgery, and maybe more than anything, we just wanted an answer. Though it has only been a few months, it seems like an eternity.

Well, we got the results finally, and there is another peak. It is not over as we so wanted it to be. The doctor told us that the results were a mixed bag. Some of the tumer is dead, and some is not. How is that for not having an answer? At the top of this peak, there is another one we have to climb. So, with our eyes locked firmly on that next peak, we are putting one foot in front of the other and marching our way on.

Here is what is happening: We are going to wait. We are going to do nothing. No chemo. No surgery. The doctors unanimously feel that the next best step is to wait. They believe there is a good chance that the tumor will shrink on its own. Instead of subjecting Keira to more chemo or more surgery when there is a chance that neither one will be necessary, they have decided to wait it out and see if the tumor will continue to shrink on its own. At the end of the month or the beginning of the next, we will rescan her. If the tumor has shrunk (please God) we will continue to monitor her, and she will not have to go through more chemo or surgery right now. If the tumor has grown, we will march right back into the fight guns blaring!

So we wait and believe and hope and trust.

Trust is a hard thing. Nothing is more precious to us than our daughter and yet there is nothing we can do for her, but leave her in the hands of the doctors and more importantly in the hands of God. But it is still hard. To trust God with the small things seems so much easier. To trust God with our daughter is a true test. But we must trust Him. He is our hope. He is her hope. He is our strength and our redeemer and the rock on which we stand. Amen.

Jason, Erin & Keira Grace

6 comments:

Anonymous said...

Jason and Erin - how very hard! I know how much you wanted this to be over now. We will be praying that this tumor shrinks away to nothing and that God gives you His grace and strength and peace as you wait the answers. Seeing the pictures of Keira bring such joy to my heart. Thank you for posting them. We will keep praying. Julie Johnson

Anonymous said...

What beautiful words - I pray your wait will be richly rewarded. As we pray and chant for Kate, we will also do so for Keira. The words we always use in those prayers and chants are SHRINK, SHRINK, SHRINK!!! And it will!!
Hugs,
Karen, Kate and crew

Anonymous said...

We will be praying that the tumor continues to shrink and that, very soon, you don't see any more peaks to climb on your horizon! That Keira will be healed and not need any more docs! She is a precious and brave girl - such a sweetheart!

Love,
Michelle

Anonymous said...

I'm sorry you have this agonizing wait. It reminds me of a sign I saw when we were at the beach. It warned of rip tides. If you were in the middle of a rip tide you were not to panic or try to fight it, but instead calmly swim parallel to the shore. When you feel the pull weaken, you could then swim back. Your waiting will be like the "try not to panic, swim parallel" part. We're keeping Keira in our prayers. Pfeifles from Rapid City

The Preister's said...

AMEN.

Anonymous said...

Dear Erin and Jason - Just a brief note to let you know we are thinking of Keira and your family and praying for her health. It is inspirational to see how all three of you are fighting this horrible disease.

Mike Emmett

About Me

At the age of 10 months, Keira was diagnosed with stage IV neuroblastoma. She has completed 4 rounds of chemotherapy and 2 surgeries. She has had a wonderful response to therapy and now has only a small mass left in her chest.

3/9/2008 - Celebrating one year from diagnosis

Stylin at the Easter Egg Hunt!

2 years and I still love cake!

First trip to the zoo - a great reward after a long day at Childrens!

- and I even got to hold a bird!

I see how long it's taking mommy to get through - I'd better get started now!

PIGTAILS!

First day of school with best friend Ellie

How am I going to stick this landing?

The Fam

Keira's first cake

Laughter

Before

Before

Daddy & Me

Daddy & Me
Before