It has been a while. As I typed in the date, I realized the previous post was almost two weeks ago. I apologize. This last week was crazy.
It feels a little like we are starting over. Her last round of chemo happened 2 weeks ago. Her first scan is not until next week. Three whole weeks of doing nothing but waiting!
During the 4 rounds of chemo, we felt like we were doing something to help Keira. Now we feel like we are just waiting . . . waiting for these tests, waiting for results, waiting and not doing anything. And while we trust God, we are also scared. The tests will show 1 of 3 things: she has gotten better; nothing has changed; or she has gotten worse. The last option is very unlikely, and the doctors believe she will show improvement. But we are her parents and we are still scared. I think during the rounds of chemo we did not have to think much about what was really happening. Everything became routine and simpler. Now we have to break out of all that and finally discover if our little girl is really getting better. That is scary.
Her first test will be next Wed at 2:30 pm. Please pray for her. She is unable to eat anything for 6 hours before the test, which in the past has been more like 8 hours because the test always gets started late. It is not easy to "explain" to a 1 year-old why she can't eat. Her response is typically just a loud scream and then another loud scream and this continues until she is fed. So please pray for her and for her parents. And of course, please continue to pray for her as we finally learn the results of the past 2 months of chemo.
We will then meet with her doctors on Friday to discuss the results of the test. The ideal result is a miracle where all the cancer is gone and we fall to our knees praising God. The results doctors are expecting is that the tumor would have shrunken allowing either surgery followed by more chemo or another 4 rounds of chemo.
Also, her counts are low right now. She got her finger pricked to draw blood yesterday and we had a hard time getting the bleeding to stop because her blood is so thin right now. She is in danger of infection and showing signs of being extra tired. She needs your prayers. (I am so tired of all this.)
We are believers in Jesus Christ. Our faith teaches us that this universe, all the bad and the good, are still under the control of God. We believe that God loves us and loves our daughter. And we trust God. We pray that He heals Keira. But we are also parents of a sick little girl. Our home is tense right now despite our trust. We are anxious even as we believe. We are nervous even as we are hopeful. And in this silence, in the waiting, in the day to day moments where we have no answers, all we can do is lean on friends and family and most importantly on our Father in heaven. And from Him and from all those who stand with us we draw strength to see this through.
Jason, Erin and Keira Grace
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3/9/2008 - Celebrating one year from diagnosis
Stylin at the Easter Egg Hunt!
2 years and I still love cake!
First trip to the zoo - a great reward after a long day at Childrens!
- and I even got to hold a bird!
I see how long it's taking mommy to get through - I'd better get started now!
PIGTAILS!
First day of school with best friend Ellie
How am I going to stick this landing?
The Fam
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10 comments:
this is written so perfectly - exactly how we feel...amazing how we can be so far apart, yet on the same page.
would you mind if i copied your post on Charli's blog, also directing people to visit Keira's site? You said everything I have been trying to say...perfectly.
We continue to think about, talk about, pray for, and care for your family from a distance...
Dear Jason, Erin and Keira,
Just a quick note to say that we are praying constantly for little Keira for a complete and permanent healing.
We prayer for you and Erin aswell that God gives you renewed strength and courage and energy to get through the next few weeks.
You and your family have been such an inspiration to my sister - samm and little Deqlan who is also suffering from Neuroblastoma and we just want to say "Hang In There". I know the pain I have in my heart as I walk this road with my sister and my nephew and I can relate to your anxiousness but I do believe that God is walking with all of us everyday and when we grow tierd and we see only one set of footprints - it is God who is carrying you! God is great!
Always remember:
Trust: in MY timing.
Rely: on MY promises.
Wait: for MY answers.
Believe: in MY Miracles.
Rejoice: in MY goodness.
Relax: in MY presence.
God Bless and please give Kiera a great big hug from all of us.
Megan, Conrad, Samm, Mark, Deqlan, Bev, Derek and rest of the family.
We are praying for all three of you! We are very hopeful that Keira will receive good news!
Love,
Bridget and family
I'm reflecting bits of 2 Cor 4 each day. Lately it's been about how we are jars of clay... pressed not crushed, perplexed not despairing, persecuted not abandoned, struck down not destroyed. This is what it sounds like in your last paragraph regarding the state of your household and mentality; living Scripture in real time. Continuing and waiting with you in prayer and love.
We know this must be an extremely difficult time for you....seeing your baby so sick. But God DOES also see your needs and will supply what you need just at the time you need it. We are praying for you and the test results.
Our love,
Jill Cox's family
Our thoughts and prayers are with you all for a good next few weeks and always,
Fred and Dodie
We continue to pray. We know God is a big God and can do anything. Please know that you are covered in prayer and love for you all. You are a walking testimony of God's goodness and love. Thank you for sharing your heart with us. We will pray for you to rest in His arms knowing that Keira's results are in His hands. Waiting is hard. "But those who wait upon the Lord will renew their strength. They will mount up with wings as eagles. They will run and not grow weary. They will walk and not faint." Isaiah 40:31. His strength is perfect. We love you guys!
Rebecca Jones for all the Joneses
Thank you for the update. You know that I have everyone I know (and some I don't know) praying for Keira. I'm wearing my Keira Prayer Team t-shirt so often, and I see people looking at it - and I know some of them pray right then. Others have asked me, or I've said, "I see you're looking at my t-shirt," so I get to tell the story and ask for prayers. I believe in this verse: "He performs wonders that cannot be fathomed, miracles that cannot be counted." Job 9:10
I am praying for complete healing.
I love you all.
Janie Heard
What a beautiful little girl. We will be praying for Keira and her family, too. Thanks for sharing your thoughts and beliefs. It makes us all stop and think-give our prayers and remember our blessings.
Charlie Ann's friends
I am praying for your darling little girl and hope that her tests show improvement. Your strong faith in God will help you.
Charli Anns' grandma B.
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